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Showing posts with label polymalgia. Show all posts
Showing posts with label polymalgia. Show all posts

Friday, February 08, 2013

Feedback from a person who has been struggling with fibromyalgia/polymyalgia and habituation to Prednisone

Fibromylagia and polymyalgia, once rarely heard of conditions, are now commonplace ailments that severely hinder health.  The treatment of these conditions is extremely poorly thought through, consisting of administering increasingly massive doses of Prednisone, or similar cortisone drugs that blow the adrenal glands to Kingdom-come.  If Prednisone fails to keep the pain down, further powerful and habituating medications may be added, including muscle relaxants and anti depressants.  Its a slippery slope downhill for many patients into chronic ill health and multiple drug dependency.

Prednisone is a far from safe drug.  Just four milligrams per day is enough to create ongoing addiction because to reduce to less than four milligrams relies on healthy adrenal glands kicking in with its own cortisone and this seldom happens (Prednisone shuts down the adrenals).  So, as Prednisone is lowered to less than 4 milligrams per day, the patient may suffer the return of their pain and fatigue with a vengeance.  In severe cases (Addisons Disease) the cardiovascular system may collapse resulting in death.

Prednisone can not be taken for long without the risk of catastrophic consequences such as progressive osteoporosis and the rapid erosion of the joints leading to severe arthritis and fractures, including collapse of the spine.

One of the most distressing things I encounter is people who are stuck on Prednisone.

However; enough of the depressing talk!

Here is some really good news.  


Here is part of a letter (published with his permission) from one of my clients who entered hospital for a minor shoulder operation and came out with a severe case of fibromyalgia which was treated with Prednisone.  It took us over a year, focussing on restoring healthy adrenal function; but he is now free of medication and again having a ball with life.

Read on folks and be inspired!

"All pretty good at this end, or at least not seeming to be going backwards! 

Finished your course of supplements beginning of December and haven't experienced any side effects to date which has to be great. Managed three pretty strenuous days climbing/ tramping, firstly Ruapehu, then the Tama lakes and finally Mt  Ngaruahoe. Thought my father was pretty amazing to have done that one when he did it with me the last time, and then to discover I am a year and a half older than what he was! Not bragging of course! Did get left behind by family who thought I wasn't following anyway, so great and we all had a good hour or more taking it all in. Lucky the mountain opened that day after the eruption closure. 

Still have some stiffness in my left hand and fingers which fades away with use and legs a little stiff but I feel getting better with time. Diet quite good with my daughter keeping me in line in that department. Just need to get a good strengthening program happening as I have felt the dangers of overdoing it in the upper body. Home improvements well under way. Hand mixing concrete the norm! 

Feeling happy about where I'm at and grateful for your expertise. Cheers Gary." 
(Name withheld)

Gary: People like you make my day - Thanks

About this website 
The advice in these articles is given freely without promise or obligation. Its all about giving you and your family the tools and information to take control of your health and fitness.

Tuesday, August 31, 2010

I am a 48 year old woman and have fibromyalgia, and a bad lower back

Cases of fibromyalgia are strongly associated with
severe nutrient imbalances and deficiencies.
I am 48 and have fibromyalgia, and a bad lower back, and the vertebrae in my neck have bone spurs and there is degeneration that causes nerve pain down one arm. I am not an exercise person - I DON'T run - always hated it, but have walked a lot. Not recently though (last 2 yrs).

My lower back gave out recently (muscular) I couldn't walk for 2 weeks. I know I really need to build up my core muscles to strengthen my lower back - tummy muscles especially. I need to loose weight too - I'm tall but carry weight around my mid section. I went for a gentle walk yesterday but as a result I am so sore all over - especially my thighs, hips - everywhere basically. Like I have been hit with a base ball bat all over my body - mostly to touch.

So what I have started doing on weekends is going to the XXXX pool - sitting in the hot spa with jets on my back and thighs then I do the aqua jogging with a belt. I figured out today that maybe I should be bringing my knees up to my tummy. when I did this I could feel my tummy muscles working. At times I could feel myself going forward so I do need to straighten up. I'm not sure what to do with my arms but will try what you have suggested, and I guess I am using my feet like paddles.

Sunday, September 03, 2006

Chronic Pain Syndromes

"Dear Gary,
I was sorry I missed hearing you speak... I have had polymyalgia for 2 years and am on Prednisone 11mg daily, but it is barely keeping it under control and I will probably have to increase it. Can you please send some information that might help?"
"M"
__________________________
Gary Moller comments:
I have been dealing with chronic pain syndromes for the last 30 years. These conditions present in various forms including polymyalgia, RSD, RSI and fibromyalgia.

These are characterised by disabling painful and inflamed muscles, tendons and joints that do not readily resolve despite medications, remedial exercise or rest. An episode of ill health or an injury might have been the precurser for the condition that may continues on with a life of its own.

These aliments are more common in women than men. There would appear to be an association in some cases with menopause. There are no known cures as such - just mangement and it runs its course, be that months or even years. I have been taking a renewed interest in these conditions, partly because I have had so many inquiries about them lately.

It is still early days; but I am highly suspiscious of two factors at play which, if properly dealt with, may asssist a healthy resolution.

Vitamin D deficiencyVitamin D has a growing list of health benefits, and "D" deficiency is associated with muscle and joint pain as well as immune system dysfunction. The people commonly afflicted by fibromyalgia and similar conditions tend to be office workers, women in their 50's and others who may have gone for long periods of deprivation of sunlight. An episode of illness, including hospitalisation sees to that.

Recent investigations of clients with "myalgic" conditions have returned positive blood test results for serious vitamin D deficiency. All that must be seen now is what happens over a year or so with deliberate boosting of vitamin D levels.

Mineral and vitamin DeficienciesMuscles and circulation do not function properly if minerals, especially magnesium and calcium are deficient. From work with athletes, I am aware of how common this health problem is and how easily a person can become deficient. Poor circulation, fluctuating blood pressure, aching muscles and joints eventuate. This may be accentuated by deficiencies in vitamins, the B Group in particular. It is too early to tell, but supplemetning with vitamins and minerals along with boositing vitamin D levels may be of benefit as would adding omega 3 oils like Evening primrose, flax seed or fish oil to the diet.


Menopause
If the sufferer is a woman 50 years old or so, strategies to alleviate menopausal symptoms is an obvious action.

What about exercise?
Exercise, other than gentle and preferably done in a pool is of little benefit if the body's anabolic processes are faulty. Attention to diet, vitamin D levels and some supplementation will eventually have the body in a position to build its strength and vitality in response to exercise.

With all good things, these natural approaches require time and patience - several months or more for any lasting benefits to show. These "healthy measures" are complementary to medical treatment and which one should continue and be subject to ongoing review.

Prednisone and other medicines
Should you keep taking Predisone or any other prescribed medicines for chronic pain syndromes? The answer is "Yes!" if you already are. Some medicines like Prednisone, especially if you have been taking a lot of it for more than a few months, should never be stopped suddenly. If you are wanting to reduce your medication, get started by getting on a regime of vitamin and mineral supplementation, get your vitamin D levels measured via your doctor, take measures to boost your "D" if needed and give these time to take effect - then talk to your doctor about the possibility of a gradual cessation.

Discuss with your doctor before starting.